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measles – DC's Improbable Science

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Every single request for information about course materials in quack medicine that I have ever sent has been turned down by universities,

It is hardly as important as as refusal of FoI requests to see climate change documents, but it does indicate that some vice-chancellors are not very interested in openness. This secretiveness is exactly the sort of thing that leads to lack of trust in universities and in science as a whole.

The one case that I have won took over three years and an Information Tribunal decision against the University of Central Lancashire (UCLAN) before I got anything.

UCLAN spent £80,307.95.(inc VAT at 17.5%) in legal expenses alone (plus heaven knows how much in staff time) to prevent us from seeing what was taught on their now defunct “BSc (Hons) homeopathy”. This does not seem to me to be good use of taxpayers’ money. A small sample of what was taught has already been posted (more to come). It is very obvious why the university wanted to keep it secret, and equally obvious that it is in the public interest that it should be seen.

UCLAN had dropped not only its homeopathy "degree" before the information was revealed, They also set up an internal inquiry into all the rest of their courses in magic medicine which ended with the dumping of all of them.

Well, not quite all, There was one left. An “MSc” in homeopathy by e-learning. Why this was allowed to continue after the findings of UCLAN’s internal review, heaven only knows. It is run by the same Kate Chatfield who ran the now defunct BSc. Having started to defend the reputation against the harm done to it by offering this sort of rubbish, I thought I should finish. So I asked for the contents of this course too. It is, after all, much the same title as the course that UCLAN had just been ordered to release. But no, this request too was met with a refusal

Worse still, the refusal was claimed under section 43(2) if the Freedom of Information Act 2000. That is the public interest defence, The very defence that was dismissed in scathing terms by the Information Tribunal less than two months ago,

To add insult to injury, UCLAN said that it would make available the contents of the 86 modules in the course under its publication scheme, at a cost of £20 per module, That comes to £1,720 for the course, Some freedom of information.

Because this was a new request, it now has to go through the process of an internal reviw of the decision before it can ne referred to the Information Commissioner. That will be requested, and since internal reviews have, so far, never changed the initial judgment. the appeal to the Information Commissioner should be submitted within the month. I have been promised that the Information Commissioner will deal with it much faster this time than the two years it took last time.

And a bit more unfreedom

Middlesex University

I first asked Middlesex for materials from their homeopathy course on 1 Oct 2008.  These courses are validated by Middlesex university (MU) but actually run by the Centre for Homeopathic Education. Thw MU site barely mentions homeopathy and all I got was the usual excuse that the uninsersity did not possess the teaching materials. As usual, the validation had been done without without looking at what was actually being taught. The did send me the validation document though [download it]   As usual, the validation document shows no sign at all of the fact that the usbject of the "BSc" is utter nonsense. One wonderful passage says

“. . . the Panel were assured that the Team are clearly producing practitioners but wanted to explore what makes these students graduates? The Team stated that the training reflects the professional standards that govern the programme and the graduateness is achieved through developing knowledge by being able to access sources and critically analyse these sources . . . “

Given that the most prominent characteristic of homeopaths (and other advocates of magic medicine) is total lack of critical ability, this is hilarious. If they had critical ability they wouldn’t be homeopaths. Hilarious is not quite the right word,  It is tragic that nonsense like this can be found in an official university document.

Middlesex, though it doesn’t advertise homeopathy, does advertise degrees in Traditional Chinese Medicine, Herbal Medicine and Ayurveda. On 2nd February 2010 I asked for teaching materials from these courses. Guess what? The request was refused. In this case the exemptions under FOIA were not even invoked but I was told that "All these materials are presently available only in one format at the University – via a student-only accessed virtual learning environment. ".  Seems that they can’t print out the bits that I asked for,  The internal review has been requested, then we shall see what the Information Commissioner has to say.

Two other cases are at present being considered by the Information Commissioner (Scotland), after requests under the Scottish FoIA were refused.  They are interesting cases because they bear on the decision, currently being considered by the government, about whether they should implement the recommendations of the execrable Pittilo report.

Napier University Edinburgh.  The first was for teaching material form the herbal medicine course at Napier University Edinburgh.  I notice that this course no longer appears in UCAS or on Napier’s own web site, so maybe the idea that its contents might be disclosed has been sufficient  to make the university do the sensible thing.

Robert Gordon University Aberdeen   The second request was for teaching material from the “Introduction to Homeopathy” course at the Robert Gordon University Aberdeen. The particular interest that attaches to this is that the vice-chancellor of Robert Gordon university is Michael Pittilo. The fact that he is willing to tolerate such a course in his own university seems to me to disqualify him from expressing any view on medical subjects.

Michael Pittilo, Crohn’s disease and Andrew Wakefield

Michael Pittilo has not been active in science for some time now, but Medline does show scientiifc publications for Pittilo RM, between 1979 anf 1998. Between 1989 and 1995 there are five papers published jointly with one Andrew Wakefield. These papers alleged a relationship between measles virus and Crohn’s disease. The papers were published before tha infamous 1998 paper by Wakefield in the Lancet (now retracted) that brought disgrace on Wakefield and probably caused unnecessary deaths.. The link between measles and Crohn’s disease is now equally disproved. 

The subject has been reviewed by Korzenik (2005) in Past and Current Theories of Etiology of IBD. Toothpaste, Worms, and Refrigerators

“Wakefield et al proposed that Crohn’s results from a chronic infection of submucosal endothelium of the intestines with the measles virus [Crohn’s disease: pathogenesis and persistent measles virus infection. Wakefield AJ, Ekbom A, Dhillon AP, Pittilo RM, Pounder RE., Gastroenterology, 1995, 108(3):911-6]”

"This led to considerable media interest and< public concern over use of live measles vaccine as well as other vaccines. A number of researchers countered these claims, with other studies finding that titers to measles were not increased in Crohn’s patients, granulomas were not associated with endothelium 49 , measles were not in granulomas50 and the measles vaccine is not associated with an increased risk of Crohn’s disease51–55 "

This bit of history is not strictly relevant to the Pittilo report, but I do find quite puzzling how the government chooses people from whom it wishes to get advice about medical problems.

Follow-up

I notice that the Robert Gordon university bulletin has announced that

“Professor Mike Pittilo, Principal of the University, has been made an MBE in the New Year Honours list for services to healthcare”.

That is a reward for writing a very bad report that has not yet been implemented, and one hopes, for the sake of patients, will never be implemented. I do sometimes wonder about the bizarre honours system in the UK.

Postcript.

On 16th February, the death of Michael Pittilo was announced. He had been suffeing from cancer and was only 55 years old. I wouldn’t wish that fate on my worst enemy.

Jump to follow-up

I’m a bit late on this one, but better late than never.

The opinionated and ill-informed actress turned talk show host, Jeni Barnett, spent an hour or so endangering your children (and hers) with what most surely be one of the worst ever accounts of measles vaccination.


The chart shows the result of the activities of people like her (see BBC report).

Chart from BBC report

She was abominably rude to a well-informed nurse who phoned in to try to inject some sense into the conversation.

The LBC tried to stop Ben Goldacre from publicising this horrific show by legal action.

Blogs are the new journalism. The response has been wonderful.  People of all ages sat up late into the night transcribing the entire broadcast.  Unlike the doubtless highly-paid actress, they did it as a public service.  They were not paid by anyone.  It is all rather beautiful..  Within a day of the legal notice being sent to Goldacre, the offensive broadcast has spread like wildfire over the web.

The result of all this hard work is that if you type ‘Jeni Barnett MMR’ into Google, every item but one on the first page links to the sites that are highly critical of Barnett’s irresponsible and ill-mannered rant (at 7 am on 7 Feb).

You can listen to the entire broadcast here.  Or read the entire transcript here.

The many people who have put work into this effort are listed, for example, on Ben Goldacre’s own site.

Holfordwatch lists many links, and also lists previous attempts of lawyers to suppress science.

When will people learn that lawyers are not the proper way to settle matters of truth and falsehood.

Dice, n . Small polka-dotted cubes of ivory, constructed like a lawyer to lie on any side, but commonly the wrong one. [ Bierce, Ambrose , The Enlarged Devil’s Dictionary , 1967]

Follow-up

The list of commentators, on Holfordwatch, grows by the minute. The story rapidly spread to the USA: for example the excellent Orac has spoken eloquently.

The condemnation extends far beyond the usual bad medicine writers.  Anyone who wants to speak the truth as they see it sees legal actions like these as a threat to freedom of speech. A side effect is that I learned about several new blogs.

One, with a name as good as its content is A Somewhat Old, But Capacious Handbag, written by (you guessed it) Miss Prism, has Today’s irresponsible tripe courtesy of Jeni Barnett.”

Another one that was new to me is the Black Triangle blog, written by Dr Anthony Cox (a pharmacovigilance pharmacist). He writes in Conspiracy?

Anti-vaccinators have exploited the internet for years. Websites, blogs, and forums are widely used by activists to promote their wrong-headed cause. However, when the pro-science pro-vaccine lobby use similar methods a common accusation is leveled at them. Here it is posted at JABS, the UK’s leading anti-vaccine website.

“There is no way all of this could have happened so quickly without Pharma backing.” “

That is really priceless. These anti-vaccination fanatics just don’t seem to be able to grasp that there is a big army of people who care so much about the public interest that they do all this for no money and a considerable cost to themselves in time and lost sleep.


Besides which, anyone who thinks that a big corporation could whip up so much support and activity in 24 hours obviously has a rather better opinion of the efficiency of big companies than I do. They’d need 25 meetings and an awayday in Majorca before anything happened . Even a university can do better than that (perhaps only 20 meetings and an awayday in Uxbridge). One does wonder why, then, universities are always being told to be more like businesses. But that is another story.


Anthony Cox also deals with another of my favourite topics in The Today Programme’s irresponsible MMR interview. I listen to the Today Programme, I listen every morning. But I do wish they could bring their medical reporting up to the same standard as their political reporting. Their policy of ‘equal time for the flat earth society” is not my idea of impartiality.

The Sunday Times for 8th February, by coincidence, has a major article by the excellent investigative reporter, Brian Deer.

An excellent summary has appeared already Dynutrix on Holfordwatch.

Part 1.MMR doctor Andrew Wakefield fixed data on autism .

“However, our investigation, confirmed by evidence presented to the General Medical Council (GMC), reveals that: In most of the 12 cases, the children’s ailments as described in The Lancet were different from their hospital and GP records. Although the research paper claimed that problems came on within days of the jab, in only one case did medical records suggest this was true, and in many of the cases medical concerns had been raised before the children were vaccinated. Hospital pathologists, looking for inflammatory bowel disease, reported in the majority of cases that the gut was normal. This was then reviewed and the Lancet paper showed them as abnormal. “

Part 2. MMR: Key Dates in the Crisis .

Part 3. Most shockingly Hidden records show MMR truth
“A Sunday Times investigation has found that altered data was behind the decade-long scare over vaccination ”

Part 4. How the MMR scare led to the return of measles.

Let’s hope that some of the original documents appear on-line soon.

The Times on 10 February carried a beautifully hard-hitting column by David Aaronovitch: The preposterous prejudice of the anti-MMR lobby

“Last week there was a bust-up in blogland.”

“Last week, justifying herself on her blog, Barnett invoked the spirit of the insurgent ignoramus. Yes, she said, she should have been ready with facts and figures on MMR.”

“That’s why I’m passionately for Goldacre, and why I find myself wondering whether we can file a class action against LBC for permitting a presenter to inflict her preposterous prejudices on her listeners, to the detriment of someone else’s kids.”

Jeni Barnett: have you lost something?. Well well, first Jeni Barnett removed the critical comments from her blog. Then she removed the blog altogether. Seems she isn’t interested in debate at all.

Neither does she understand the internet. You can read the missing blog here, and the invaluable Quackometer has reproduced the whole blog post and all the missing comments. Great work Andy,

Stephen Fry left a comment (#223) on Goldacre’s site.

“The fatuity of the Jeni Barnett woman’s manner – her blend of self-righteousness and stupidity, her simply quite staggering inability to grasp, pursue or appreciate a sequence of logical steps – all these are signature characteristics of Britain these days. The lamentable truth is that most of the population wouldn’t really understand why we get so angry at this assault on reason, logic and sense. But we have to keep hammering away at these people and their superstitious inanities. We have to. Well done you and well done all you supporting. I’ve tweeted this site to my followers. I hope they all do their best to support you. Publish and be damned. We’ll fight them and fight them and fight them in the name of empricism, reason, double blind random testing and all that matters.”

London Evening Standard on 11 February. Nick Cohen on How my friends fell for the MMR panic.

Press Gazette covered the start of the srory on 6th February, here.

MSNBC TV broadcast by Keith Olberman votes Andrew Wakefield as “today’s worst person in the world” on February 10th. Click in video “Vaccine lie puts kids at risk”.

Write to your MP to ask him/her to sign Early Day Motion 754, MMR Vaccine and the Media

David Aaronovitch writes again in the Times, February 14th, “We need an inquiry into how Andrew Wakefield got away with it“.