The offering of quack cancer treatments at an exorbitant price is simple cruelty. The nature of the Burzynski clinic has been known for some time. But it has come to a head with some utterly vile threatening letters sent to the admirable Andrew Lewis, because he told a few truths about Stanislaw Burzynski’s despicable outfit. Please read his original post, The False Hope of the Burzynski Clinic.
I have to add by two-pennorth worth to the row that has blown up in the blogosphere at the outrageous behaviour of Burzynski. I hope other bloggers will do the same. There is safety in numbers. We need a Streisand effect to face down these pathetic bullies. It’s the "I am Spartacus" principle.
I won’t repeat all the details. They have spread like wildfire round the web. Briefly, it was sparked off by tragic case of a 4-year old girl, Billie Bainbridge who has a rare form of brain cancer. Well-intentioned pop stars have been trying to raise £200,000 to "enrol her into a clinical trial" at Burzynski clinic in Texas, despite the fact that Dr Stanislaw Burzynski has already been on trial for cancer fraud. In fact his clinic is not allowed to treat cancer patients, but it has evaded that ban, for many years, by pretending to run clinical trials. Normally patients volunteer for clinical trials. Sometimes they are paid a modest amount. Never, in the civilised world, are people asked to pay hundreds of thousands of pounds to be a guinea pig. Dorothy Bishop has written about The Weird World of US ethics regulation.
There is nothing new about this. The Cancerbusters site won the Anus Maximus Award for the year 2000. The award was announced in the following words:
The top award this year goes to the acolytes of Dr Stanislaw Burzynski who have created an advertising site at www.cancerbusters.com using a five-year-old boy named Thomas Navarro. Thomas is dying of cancer and this site exploits that tragedy to try and get the law changed so that quacks can have the untrammelled right to deceive desperate, sick people by promising them magic cures for cancer, AIDS and other diseases for which no cure is yet available. While this site is specifically a Burzynski promotion, his competitors support the site and mention it because if the campaign is successful it will dramatically increase the size of the market for quackery and therefore their opportunities to make money. [The boy died in November 2001]
The letters sent to Andrew Lewis are unspeakably nasty. They come from someone who calls himself "Marc Stephens" who claims to represent the company.
|
Le Canard Noir / Andy Lewis, I represent the Burzynski Clinic, Burzynski Research Institute, and Dr. Stanislaw Burzynski. It has been brought to our attention that you have content on your websites http://www.quackometer.net/blog/2011/11/the-false-hope-of-the-burzynski-clinic.html that is in violation of multiple laws. Please allow this correspondence to serve as notice to you that you published libelous and defamatory information. This correspondence constitutes a demand that you immediately cease and desist in your actions defaming and libeling my clients. Please be advised that my clients consider the content of your posting to be legally actionable under numerous legal causes of action, including but not limited to: defamation Libel, defamation per se, and tortious interference with business contracts and business relationships. The information you assert in your article is factually incorrect, and posted with either actual knowledge, or reckless disregard for its falsity. The various terms you use in your article connote dishonesty, untrustworthiness, illegality, and fraud. You, maliciously with the intent to harm my clients and to destroy his business, state information which is wholly without support, and which damages my clients’ reputations in the community. The purpose of your posting is to create in the public the belief that my clients are disreputable, are engaged in on-going criminal activity, and must be avoided by the public. You have a right to freedom of speech, and you have a right to voice your opinion, but you do not have the right to post libelous statements regardless if you think its your opinion or not. You are highly aware of defamation laws. You actually wrote an article about defamation on your site. In addition, I have information linking you to a network of individuals that disseminate false information. So the courts will apparently see the context of your article, and your act as Malicious. You have multiple third parties that viewed and commented on your article, which clearly makes this matter defamation libel. Once I obtain a subpoena for your personal information, I will not settle this case with you. Shut the article down IMMEDIATELY. GOVERN YOURSELF ACCORDINGLY. Regards, Marc Stephens |
Then later, at the end of another “foam-flecked angry rant”
|
. . . If you had no history of lying, and if you were not apart of a fraud network I would take the time to explain your article word for word, but you already know what defamation is. I’ve already recorded all of your articles from previous years as well as legal notice sent by other attorneys for different matters. As I mentioned, I am not playing games with you. You have a history of being stubborn which will play right into my hands. Be smart and considerate for your family and new child, and shut the article down..Immediately. FINAL WARNING. Regards, Marc Stephens |
Despite the attempt at legal style, "Marc Stephens" is not registered as an attorney in Texas.
Andy Lewis did not yield to this crude bullying. His post is still there for all to read. Before the days of the internet he would have been on his own. But now already dozens of blogs have drawn attention to what’s going on. Soon it will be hundreds. Burzynski can’t sue all of us. It’s the Streisand effect, or the "I am Spartacus" response.
Come on. Marc Stephens, make my day.
Some notes on the science
The Burzynski treatment is piss. Literally. A mixture of substances extracted from the patient’s own urine is dubbed with the preoposterous pseudoscientific name "antineoplastons". There are no such things as "neoplastons". And the chemicals are now made in the lab like any other drug.
|
The main component seems to be a simple organic chemical, phenylacetic acid (PA). It is produced in normal metabolism but the liver copes with it by converting it to phenylacetyl glutamine (PAG), which is excreted in the urine.
|
|
Saul Green has summarised the evidence
Burzynski has never demonstrated that A-2.1 (PA) or “soluble A-10″ (PA and PAG) are effective against cancer or that tumor cells from patients treated with these antineoplastons have been “normalized.” Tests of antineoplastons at the National Cancer Institute have never been positive. The drug company Sigma-Tau Pharmaceuticals could not duplicate Burzynski’s claims for AS-2.1 and A-10. The Japanese National Cancer Institute has reported that antineoplastons did not work in their studies. No Burzynski coauthors have endorsed his use of antineoplastons in cancer patients.
Cancer Research UK has a summary of the current evidence, Hope or false hope?
Despite it being illegal to advertise cancer cures in most country, the list of people who flout the law to make money from the desperate is enormous/ You can find a list of them at Quackwatch. Burzynski isn’t the only one but he could well be the most expensive.
Latest developments
You can follow the ever-growing list of publications by people who are determined to resist Burzynski at Josephine Jones "Stanislaw, Streisand and Spartacus". There is also a list at anarchic_teapot’s blog
Follow-up
Saturday 26 November Another frothy threat from Burzynski’s alleged representative. Lot’s of RED ARROWS.
Monday 28 November The Streisand effect is developing rapidly. The definitive lists of posts are here and here. But there are two that I must mention.
Today Rhys Morgan has published Threats from The Burzynski Clinic. The same “Marc Stephens” has made the same sort of threats against him as he made against Lewis. Rhys Morgan is still at school, and is now 17 years old. He was the hero of the MMS scandal.
David Gorski, a real oncologist, has gone into the evidence in excellent detall with Stanislaw Burzynski: Bad medicine, a bad movie, and bad P.R.
25 responses so far ↓
1 Stanislaw, Streisand and Spartacus | Josephine Jones // Nov 26, 2011 at 11:40
[...] The cruelty of the Burzynski Clinic must be stopped. Come on, Marc Stephens, make my day [...]
2 Acleron // Nov 26, 2011 at 12:32
Well done Sir.
3 BadlyShavedMonkey // Nov 26, 2011 at 19:01
Indeed, well done.
4 Skepticat // Nov 26, 2011 at 19:31
Huzzah for quackbusters!
I’m just waiting for the other high-profile skeptic blogger who’s been on the receiving end of Stephens’ bullying to blog about it, then I’ll join in.
5 Bloggers react as leading quackbuster is threatened with libel over exposé of charlatan cancer claims « Richard Wilson's blog // Nov 27, 2011 at 02:21
[...] David Colquhoun has more background on this story, and comments: “We need a Streisand effect to face down these pathetic bullies. It’s the [...]
6 Moochie // Nov 27, 2011 at 14:54
These people (Burzynski and his flack, Stephens) are pathetic. Why haven’t the authorities shut them down? Taking one’s ailing child to one of these quacks is as fruitless as consulting a faith healer (although the faith healer may be cheaper). The ensuing tragic outcome, however, will be no less painful. My heart aches for this family, and I send them my heartfelt good wishes.
7 Science-Based Medicine » Stanislaw Burzynski: Bad medicine, a bad movie, and bad P.R. // Nov 28, 2011 at 06:06
[...] the Japanese National Cancer Institute. So what we have here is a therapy that, contrary to what some skeptics say, is not without a modicum of biological plausibility. After all, it’s not entirely [...]
8 Stanislaw Burzynski: Bad medicine, a bad movie, and bad P.R. | Health Articles // Nov 28, 2011 at 08:29
[...] the Japanese National Cancer Institute. So what we have here is a therapy that, contrary to what some skeptics say, is not without a modicum of biological plausibility. After all, it’s not entirely [...]
9 Dear Observer Part 2…………… « Nucella's Blog // Nov 28, 2011 at 09:10
[...] Jones who is maintaining a list of all blogs dealing with this matter. Andy Lewis, Ben Goldacre and David Colquhoun have all made eloquent and persuasive contributions which deserve wider [...]
10 NeuroLogica Blog » The Burzynski Clinic – Another Crank Tries to Intimidate a Blogger // Nov 28, 2011 at 14:10
[...] a person calling himself Marc Stephens wrote a very threatening letter to Andy Lewis who wrote a critical post about the cancer clinic of Stanislaw Burzynski called The False Hope of [...]
11 “Alternative” cancer clinic threatens to sue high school blogger | Bad Astronomy | My Blog // Nov 28, 2011 at 23:35
[...] in medicine and the misuses thereof, has some choice words about Burzynski and his ideas. So does David Calquhoun, a British pharmacologist. So does — at great length and detail — Dr. David Gorski, and so does [...]
12 For Burzynski, Cancer Is Big Business « An Evidence Based Blog // Nov 29, 2011 at 05:00
[...] Well Professor David Colquhoun states [...]
13 “Alternative” cancer clinic threatens to sue high school blogger | Space Travels - Space Turism // Nov 29, 2011 at 14:00
[...] in medicine and the misuses thereof, has some choice words about Burzynski and his ideas. So does David Calquhoun, a British pharmacologist. So does — at great length and detail — Dr. David Gorski, and so does [...]
14 Burzynski blogs: My Master List | Josephine Jones // Nov 29, 2011 at 19:50
[...] The cruelty of the Burzynski Clinic must be stopped. Come on, Marc Stephens, make my day Professor David Colquhoun, DC’s Improbable Science, 26/11/11 [...]
15 First do no harm…… « The Witch Doctor // Nov 30, 2011 at 01:23
[...] D C SCIENCE [...]
16 That’s THE BURZYNSKI CLINIC | Butterflies and Wheels // Nov 30, 2011 at 16:25
[...] in medicine and the misuses thereof, has some choice words about Burzynski and his ideas. So does David Calquhoun, a British pharmacologist. So does — at great length and detail — Dr. David Gorski, and so does [...]
17 Stanislaw Burzynski: Bad medicine, a bad movie, and bad P.R. - InstantKEbooks Blog - InstantKEbooks Blog // Dec 3, 2011 at 04:04
[...] the Japanese National Cancer Institute. So what we have here is a therapy that, contrary to what some skeptics say, is not without a modicum of biological plausibility. After all, it’s not entirely [...]
18 “Alternative” cancer clinic threatens to sue high school blogger | Bad Astronomy | My Blog // Dec 3, 2011 at 12:33
[...] medicine and a misuses thereof, has some choice difference about Burzynski and his ideas. So does David Calquhoun, a British pharmacologist. So does — during good length and fact — Dr. David Gorski, and so [...]
19 Los Links 12/2 | En Tequila Es Verdad // Dec 8, 2011 at 00:29
[...] DC’s Improbable Science: The cruelty of the Burzynski Clinic must be stopped. Come on, Marc Stephens, make my day. [...]
20 Supporting Somebody with Cancer - Page 3 - Christian Forums // Dec 22, 2011 at 14:24
[...] have threatened lawsuits. Ironic eh? eg; This is long but worth the read if you have the time: The cruelty of the Burzynski Clinic must be stopped. Come on, Marc Stephens, make my day Also kind of long but here he threatens a 17 year old schoolboy: [...]
21 Details details | Butterflies and Wheels // Jan 7, 2012 at 19:49
[...] up some links from the coverage of the Burzynski matter. From David Colquhoun, an item from the National Council Against Health Fraud newsletter March/April 1997: The trial of [...]
22 Ducks are nuthin’ but trouble « Short and Spiky // Jan 11, 2012 at 21:08
[...] The cruelty of the Burzynski Clinic must be stopped. Come on, Marc Stephens, make my day [...]
23 Dr Burzynski Comes to the UK | The Quackometer // Mar 16, 2012 at 18:26
[...] when he is criticised, he hires thugs to try to shut people [...]
24 Ducks are nuthin’ but trouble » Short & Spiky // Jun 12, 2012 at 01:07
[...] The cruelty of the Burzynski Clinic must be stopped. Come on, Marc Stephens, make my day [...]
25 The exploitation of cancer patients is wicked. Carrot juice for lunch, then die destitute // Mar 25, 2013 at 14:16
[...] It even takes seriously the notorious Burzynski clinic about which so much has been written, both here and in the [...]
You must log in to post a comment.